Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Thursday, December 20, 2012

RACA Smith Family Christmas :)

Merry Christmas, Frohe Weihnachten, Feliz Navidad.....

Today we celebrated our Christmas and it was beautiful, magical and fun.

Right now, to tell the truth, I am fighting a horrid food coma from eating way to much all day and especially tonight! Oh my poor tummy, and how much it had to endure! How come my eyes and brain think I can handle all this food is beyond me so now I just have to suffer ;)

Joking aside, the boys woke us up at 6:52 am by turning on the lights in our bedroom and jumping on our bed .... I thought I was prepared by setting up the coffee last night, only to discover I had started brewing it as well last night so that cold coffee greeted Ron and I this morning ;)

This year we scaled back drastically on how much we could spend for Christmas, but to some gifted Christmas Angels wrapping talents it seemed like there was a mountain of gifts :) for the first time in the boys life they each wished for very different things for Christmas. Connors wishes were all about Art and Paintings, so he got a easel, Canvases, Acrylic Paint, Brushes and cleaner. Alexander got several different Football things. Figurines, Helmets, Books about Football and a Denver Broncos Towel. They both together got some Spy Gear, a Science Kit, Bolt and Nuts Art and Craft Kits, LEGO, Chapter Books, Puzzle Books and LEGO Watches and beautiful Christmas Ornaments. A lot of this came from Friends and Family so even when we cut back they still ended up getting very spoiled.
I was thrilled to get a new red Kitchen Aid from the boys! Three months ago my little white one that was a Wedding Gift from my Parents, died! I was very heartbroken over it as I used it almost daily. Granted, I survived thanks to having a bigger green Kitchen Aid... But this one is not as much fun to use as the motor on it sounds like a small Airplane Engine. I also was treated to sweets, clothing, boots and a blanket. So this Mommie was happy as well :)

The rest of the day was just pure fun. Building LEGO, playing in the snow, napping and preparing all the food that caused my food coma!

Tonight, I have to say was the most fun Family Dinner I can recall. Ron started out making a toast and that let in us four taking turns making toasts throughout the whole meal. We laughed so much but also I was blown away at some of the more serious 'toasts' that were done, especially by Alexander. He went on to say how lucky and grateful he was that we are his Mom and Dad and that we adopted him and Connor. He then sad he wants to grow up and make a lot of money so he can buy Connors Medicine....
On the funny note we also had speeches about how good Garlic is for us as long as we are surrounded by people that love us ;)
The boys started to giggle more and more and they both finished a whole bottle of Apple Cider!

There is a real beauty in having an early Christmas :) I am happy how our day went and that all the pre Holiday stress is all over now. Ron goes to work tomorrow and the boys and I will just soak in the Holiday Spirit around us.

Hugs,

R A C A

No comments:

Post a Comment