7:30 AM and Connor already had his breakfast ordered and is now watching Play House Disney.
He had a bit of a rough night coughing a lot and me trying for a while to adjust the incline in his bed without him realizing it. He does not like sleeping above a 15' Angle and I tried to get him to 22'...
Kim, Connor's Room Mate's Mom told me to ask about a Humidifier for Connor since the air here in the hospital is so so dry. So at 2:30 AM someone came in and hooked up an oxygen tube that pointed at Connor's face and blew cool mist at him. He slept a lot better after that and just wondered this morning why his pillow and shirt were all wet :)
On a very positive note... His oxygen levels were at 98 all night and this morning he hit 99 and 100 for a short period... we love to see those numbers close to 100!!!! :):):)
No news from Niki.... when we txt at 2:40 AM she was still not making progress and the doctor told her to take a nap. I don't want to txt her now since it is 4:40 AM in Anchorage right now but will post as soon as we get news :)
7:37 AM in Anchorage AK, Niki our precious daughter gave birth to her beautiful daughter who weight in at 8 lbs and 13 oz and 21 inches long. It was definitely not an easy birth considering the lengh of Niki's labor. Thank to all the encouraging words from all of you and more up-dates will come soon :)
Where do I start from today? I have to admit we were so mesmerized that I did not take many note today at all. The big news for today was we are out of isolation!!!! The results that both tests were negative came in this afternoon while Alexander and I went to a walk to the grocery store. On our way back from buying some Valentine Chocolates for Connor's two favorite nurses and the 9th and 4th floor we were surprised to see a smiling Connor and Ron sitting in the lobby.
Connor is still in soft food so his diet is Mashed Potatoes with gravy, soup, puddings and ice cream. He did really well on trying to participate in some physical therapy Ron and I did with him today and he did feed himself every meal today. His coordination is obviously not the best and his hand will start to shake but he is very determent now.
Dr. Pachman and Dr. Curran came by to say good by for the weekend as they are headed to the CureJM convention in Austin this weekend. We did meet Dr. Kline very briefly as she is the head of the Rheumatology Department and she said she will come by tomorrow to take a look at Connor.
Alexander had a bit of a rough day today as he was not allowed to play any video games do to not behaving very well lately. We so feel for him and how hard this all is so we try to give him an outlet as best as we can. As mentioned I took him to the Store which was a few blocks form the hospital hoping the fresh air and walking would burn of some energy. He then got to pay in the playroom for a while and also loved playing with Grant who taught him how to play the card game 'war' It was a very touching picture because at first Alexander started out sitting in a chair next to Grant's bed and in the end he was laying in Grant's bed right next to him. We are so so glad that all the boys get along so well. I wonder what a nightmare it could be if you were a bad match and had to share a room while being in isolation???????
According to a nurse there are some match ups on our floor that don't go over so well.
The new hospital will be all private room like Children's in Dallas and of course privacy can be heavenly but I wonder now how much parents and kids miss out when you don't have the human connection with others that go thru the same kind of upset and pain. Of course it is easy for me to say because our match ups have been good one - ha ha
Ron will send me an e-mail with things that went on today since I really can't recall anything else.
We are so so thrilled that we are an Opa & Oma now and those news pretty much cover it all for today :):):):)
Hugs,
R A C A
No comments:
Post a Comment