Happy Valentine to all of you!
I am hoping this will be a great day for all of you and us here at the Hospital as well. It is Sunday which we learned translates into a day 'off' for the kids here :)
Connor is still sleeping at 8 AM which is a record and the three of us are sitting here waiting for him to wake up :) Alexander and I had a rough night due to the room at the Kohl's House being so hot last night. Made it hard to breath and probably did not help the cold we all are trying to catch 'NOT' :)
So we all had a nice breakfast at the cafeteria this morning and after Dr. Cline took a look at Connor and he gotten his medications it was off to see the Rainbow Dogs. It is an organization that brings therapy dogs to the Brown Children's Center (playroom) and the boys love it. Today they had three dogs there and also every child that came got a 'Build a Bear' Box. Connor got a bear called 'Chocolate' and Alexander got a bear called 'Darf Vader' - tell me is that not fitting???? :)
Today Connor is again on 10 mg Prednisone and the plan is to have him on 560 mg Solumedrol intravenous twice a week and the rest of the week will be 10 mg Prednisone a day. He will get the 15 mg of Methotrexate once a week.
Tomorrow will be another Lab day that will give an idea again where Connor stands on his blood levels, plus we will see Dr. Pachman & Dr. Curran again as well. Dr. Cline told us today that they are still working on the Care Flight to take Connor back to Denver. All four doctors agree (Dr. Cline, Dr. Pachman, Dr. Curran and Dr. Miller) that he is not ready to go on a Commercial Flight so there in no way around this one. It looks like I will fly with Connor and Ron will be in charge of Alexander and all the luggage.
We have been touched by so so many people here at CMH and the resident patients we have met. I wish I could put into words what our stay here in Chicago has done to all of us. We will leave this place looking forward to coming home BUT we will also leave a piece of our heart here. I could mention names here from every level and would probably type for a long time: The Doctors are amazing as are the nurses, the Janitors to the Cafeteria Employees. The other patients who are the most composed and thoughtful little people I have ever met to their parents who are amazing in their compassion and caring. There really is no end to how grateful we will always be to this City, the Hospital and the People that live and work here!
I so hope you are not tired reading about this because I want everyone that has touched us to be mentioned here.
Today on Valentines Day Connor and Alexander received about 20 Cards from people that care about them!
To complete a perfect Day here came a visit from our Room Neighbors who were discharged yesterday. They brought gift bags for Connor and Alexander and gifts each for Ron and I. I could have cried when I saw two beautiful T-Shirts from 'Old Navy' and lots of other goodies that you so appreciate when you 'live' in a hospital. Our Journey with JDM as been lined with Angels from the beginning, starting at home, reaching to friends in Texas, to Germany and now here in Chicago.
So when you feel down please trust me when I tell you there is good out there and we are surrounded by it when it is needed!!!
We also got a new room-mate today who just went through his first Chemo Therapy. You can imagine how miserable he is feeling right now! He had a visit tonight from his Pastor who seems to be a wonderful woman. When it was time for all his visitors to leave she came over and asked if I would mind if they prayed for Connor. I told her that I am fine with it as long as Connor feels up to it. Connor of course said yes right away so everyone that was in the room made a circle around Connor's bed and she led them all in prayer. This was a new experience for me and it was wonderful to see the big smile on Connor's face when everyone said 'Amen'. So I am ending this day once again on a positive note....
Good Night, Gute Nacht....
Love to all of you!
Hugs,
R A C A
No comments:
Post a Comment