Connor will be getting his Medi Port put in this morning at 10:30 AM.
When we went through the protocol last night again about the 10 hours of no food prior to surgery and the 2 hours cut off time for liquid I had to think that for Connor this is the 3rd time in 2 months that he will be going under Anesthesia. First it was the Muscle Biopsy, then the PICC Line and now the Port. This will bring him to 5 total if you recall his MRI when he was a toddler and then the following Spinal Cord Surgery. Just to think I met Adults that have never been in surgery and he has had 4 in the 5 years of his life.
Connor is holding up very well this morning and took a total of 6 medications already without the comfort of his Chocolate Ice Cream today and he did so without a complain and the only reaction he had was scrunch up his face. He is right now hooked up to the Solumedrol that will run for one hour. To keep him distracted are the wonderful movies we have received as gifts for Connor. On top of the list is Narnia one he got (out of many others) from the Burkhardt Family and Narnia two from the Simpson Family :) So know that you are helping a lot this morning :)
Today at Noon there will be a Conference as I had mentioned of the Doctors and Therapist getting together and talking to us parents plus the patient to show us where we stand. I just got a gift from our nurse Chinonye in regards to what she is hearing about our tentative release date. It looks like it is set for March 12, 2010!!!
Now it might be sooner if Connor makes lots of improvements and it might be pushed back if there are anymore set-back but by God it feels wonderful to have an idea of what we might be looking for :):):)
It is 5 PM right now and the Medi Port Surgery went very well :) I got to go into the surgery room with Connor and hold his mask for him while he got to play with his doctors I-Phone. As soon as he went to sleep I got out to make the Conference with Connor's Doctor Dr. Soep, his Rehabilitation Doctor, all three Therapist, Speech, OT and PT, his Social Worker and Phychiatrist. There also was someone from Family Life there as well. The set-up was wonderful in regards to each telling me how they felt Connor was doing and what progress he was making. It sounds like we are looking at being at the Hospital for two to three more weeks at least.
Connor did have a busy afternoon because he was on the go pretty much as soon as he was released from Recovery. When I arrived at recovery the nurses were laughing and telling me he woke up and talked non-stop and he truly has not stopped talking since. Not sure if the drugs he got for his surgery are causing this but if you remember Connor as the quiet one of our two you would not believe it seeing him today!
We also had some fun today in regards to Connor getting a visit from our Pastor Carlson and his lovely wife. It was truly up-lifting talking to both of them and it made us realize how much we miss seeing our church family. Connor was telling Pastor Carlson and his wife that he can't wait to go to Basketball Camp this year so I am crossing my fingers he will be able to participate at some level :) He also was overjoyed to get three new movies to watch and a most beautiful card ... So Thank You to everyone from the Lake George Community Church for the wonderful support and prayers. It truly is appreciated a lot and please know that God has been with us through-out this journey and shown us his presence through all of you.
We also got to meet the lovely Stenzel family today who came into the hospital today for their daughters treatment. It was wonderful talking to them and we hope we did not scare them off by Connor talking non-stop and me not doing any better. It truly is so good to meet someone that has been there, done that.
Ron and Alexander arrived well in Anchorage last night and seem to have lots of fun. I got some great pictures of Ron and Harlow and Niki and Harlow on my txt but can't figure out how to download them. As soon as I do I will post them :) Alexander got a very special treat today because Miss Celeste took him to no other but a 'Star Wars Exhibit' that is displayed in Anchorage right now. Can't wait to hear all about his adventures. So Thank You Celeste for giving this gift to Alexander!
Right now I am hoping for an early night for the both of us since for some wicked reason I feel tired today. Connor is the one that should feel tired but he is still going strong. I hope his non stop talking will stop by tomorrow - ha ha
Connor's favorite song right now is Major Tom and he asked me today to post it to his blog, so here you go ....
| Lyrics for: Major Tom (I'm Coming Home) | |
| Standing there alone, The ship is waiting. All systems are go. "Are you sure?" Control is not convinced, But the computer Has the evidence. No need to abort. The countdown starts. Watching in a trance, The crew is certain. Nothing left to chance, All is working. Trying to relax Up in the capsule "Send me up a drink." Jokes Major Tom. The count goes on... 4, 3, 2, 1 Earth below us Drifting, falling. Floating weightless Calling, calling home... Second stage is cut. We're now in orbit. Stabilizers up, Runnning perfect. Starting to collect Requested data. "What will it affect When all is done?" Thinks Major Tom. Back at ground control, There is a problem. "Go to rockets full." Not responding. "Hello Major Tom. Are you receiving? Turn the thrusters on. We're standing by." There's no reply. 4, 3, 2, 1 Earth below us Drifting, falling. Floating weightless Calling, calling home... Across the stratosphere, A final message: "Give my wife my love." Then nothing more. Far beneath the ship, The world is mourning. They don't realize He's alive. No one understands, But Major Tom sees. "Now the light commands This is my home, I'm coming home." Earth below us Drifting, falling. Floating weightless Coming home... Earth below us Drifting, falling. Floating weightless Coming, coming Home... Home..... Hugs, R A C A |
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