This morning Connor had Blood taken again and after he got a visit from the complete Doctor Team of Dr. Pachman (I counted 7 Doctors in the room) Ron and I were informed that we are also invited to join the Research Dr. Pachman is doing and that we can give some blood as well :) Connor was very worried about us and did not want us to be hurt. So he volunteered to go to the Lab with us and to hold our hands. It was to funny how concerned he was considering how often he gets poked for blood. They also took pictures of our finger nails to see our blood vessels. Alexander had all of this done this Monday so he was free to go and take a tour of the Hospital again with one of Dr. Pachman's Resident Doctors.
Connor also was weight again and his weight for today was 18.8 kg. They also measured Connor & Alexanders legs as well to compare them to each other. Connor's legs do look fairly skinny but then he has not used them much in the last 2 months.
We were also informed by Dr. Pachman that Connor will receive a Port in his Chest either Monday or Tuesday. This will make it much easier on him when we get back home and he has to continue his treatment at home. It will save him from being poked by a needle each time. They have to put him under anesthesia to do this and plant a little button in his chest but they might also take a skin biopsy while he is under. This is not 100% clear yet but is in consideration. Also, our new release date from CMH has been projected for Wednesday or Thursday next week.
Connor received his second dose of Methotrexate today of 15 mg, so it is up 3 mg from last Saturday. He also wore his braces on his feet 3 times today and even thought he does not like them he did not complain to much. We kept them on 15 min each time and after about the first 5 min he forgot about them :) They are called Moon Boots and tomorrow I will try to remember and take a picture.
The big success story of today is Connor eating three teaspoons of yogurt all by himself! He also picked up his Chocolate Milk container and drank from the straw beautifully. This really is HUGE since he has not fed himself in a month!!!
I do post pictures almost every day on Facebook so feel free to look at them :)
So now to the non medical part........
When we 'lived' on the 9th floor our boys started a precious friendship with Stanton who works for the Environmental Department in the Hospital. He cleans all the rooms on the 9th floor and always made time talking to the boys and spending time with them. One of Stantons Trademarks is wearing a Headband and Arm Bands with matching colors each day. He changes colors everyday and always asked Connor and Alexander which color they wanted to see or if they wanted to be surprised. Well, when we moved to the 4th floor the biggest upset for both Connor & Alexander was missing Stanton. They asked about him all day so we took them up stairs to visit but found out it was his day off. The next day Stanton came down stairs for a visit and then we went back yesterday to see him. To make a long story short... we had written a letter of recommendation for Stanton and his outstanding work ethics and character. He came in today with a gift for the boys in the form of Sweater Jackets with the CHM Sign and Red White and Blue Headbands and Wristbands to always remember him by.... Talk about meeting Angels. The boys were so so so happy and I know they will never forget this.
On another note Alexander might be in love with Erin, one of Doctor Pachman's 3rd year Resident Doctors. She has taken Alexander for lunch at the Hospital last week and today asked us if she can take Alexander to the Lincoln Zoo tomorrow. We did not tell him yet because he might not have gone to sleep tonight but she will pick him up tomorrow at 10:30 AM. We as parents approve whole heartily because not only is she very beautiful but she is smart and kind!!! P E R F E C T choice from Alexander :)
Connor on the other hand has lost his heart for Dr. Curran. She is the right hand of Dr. Pachman and has spend a lot of time talking to us and Connor. Just like Erin she is just amazing, very beautiful and extremely smart. Connor keeps telling us and her how nice she is and that he really likes her.
And last but not least. You read our posts about Alexander being on the Hospital TV all the time. Today Channel 5 from Chicago showed up in the play-room and asked us parents to sign a release paper so they could tape the kids for a news story that will help raise money for he hospital. So I am not sure how much they tapped of Connor coloring once again Star Wars Pictures but I did hear Alexander talking to the Camera man and him taping Alexander and the picture he was working on.
The Show will air on Saturday the 13th here in Chicago, so we won't be here to watch it.
This Sunday the big event in the Play Room is Miss Illinois coming in to do some arts and crafts with the kids. i wonder how many dad's will volunteer for the play room run this time... of course there might not be many since it also is Super Bowl Sunday - haha
Hugs,
R A C A
No comments:
Post a Comment