It is 2:52 PM right now and I am so positive right now that we are at the right place at the right time. This morning Physical Therapy, Miss Kerri Carrie (sp) showed up and when she first came in and told Connor who she was his little face fell :( but then she came and asked me what medication he was on for pain and when usually his good time during the day is. I told her he had just gotten the Tylenol and food so with in 45 minutes he should be good to go. She told me she would be back then and from there on out it was just fun to watch Connor come out of his shell. We went to the 6th floor where the Rehabilitation Department is located and at first Kerri went and found a wonderful wheel chair that fits Connor to a T and also makes it possible for him to move around by himself (which he has done quiet a bit today). We then went to the Therapy / Playroom and Connor got to try and throw some Velcro balls and then play with Shaving Cream, a mirror and foam toys.
When this was done we was tired so we went to his room and ordered lunch. While he was waiting for his lunch we had a visit from the Nutritionist and the Rehabilitation Doctor for an assessment. Connor tuned a lot of those visits out because he was eager for his food to arrive and also wanted to take his wheel chair for a spin.
So as soon as he was done with lunch we headed out and met up with some players from the Nuggets Team plus Rocky the Mascot. Connor got a headband and a signed little ball and while he was chatting away I was once again signing a release form since they were taping and taking pictures. We truly do not seek this out and it seems funny that in the last three weeks I feel like I signed 15 Release Forms for Connor and Alexander.
Back in our room this afternoon we got a visit from the head of Rehabilitation who told us they are working o a plan but have to coordinate it with Dr. Soep as well. She gave me the opinion that the best way to proceed would be intense in house therapy with a possible 2 to 3 hours twice daily. She thinks there is more success by doing this then out patient therapy especially considering where we live. They will have to check with our insurance to see what this means and we will hear back from them
So Dr. Sope came by later and told us the the plan might be for Connor to move to the 6th floor tomorrow to be on the Rehabilitation Floor and his medical treatments will stay about the same for now. He will be back on 560 mg of Solumedrol tomorrow. Also two of his blood levels were a bit higher then the ones recorded in Chicago so I think she might talk to Dr. Pachman or Dr. Curran about this as well.
Which reminds me, Connor had his first blood taken today on his PICC Line and loved it. He told me afterwards that it was great not being poked and that he did not feel anything!
Connor was a bit stunned when we went to the Lobby earlier and one of the Hospital Representative talked to him and said he should be glad to be here because TCH was so much better and more fun the CMH. He said that is not true and that they are both great :) It is sad to say that at age 5 our son has experienced three Children Hospitals, Children's in Dallas TX, Children's Memorial Hospital in Chicago IL and now The Children's Hospital in Aurora, CO...
And one thought to the food. You know how I kept saying how there could be a McDonald's in a Hospital when we were in Chicago? Well here they have a Gelatto Ice Cream Bar in the Lobby and I am not sure which has more calories... Pistachio Ice Cream or a Big Mac? - ha ha
So you see we got some sleep and we are doing much better.
Hugs
R A C A
P.S. I am ending this post feeling homesick for my Husband and Alexander. I thought it would be all about coming home to CO but now find that this journey thought us it is not about location but being with the people you love most.
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